“Treasure trove' and ‘gold mine' are
descriptions which jar when describing the sensitive health care
data recorded by GPs in countless daily consultations up and down
the country in the expectation of doctor-patient confidentiality.
Yet, this is how some people perceive the patient records of 55
million citizens which the UK Government plans to make available to
a variety of users in pseudonymised form in a scheme unveiled
without fanfare in May 2021, formally known as the General Practice
Data for Planning and Research. Supported by David Davis MP, an
assortment of medical bodies, charities and privacy campaign groups
have forced a Government rethink – at least for now.
In truth, anonymised datasets such as this have for years been
available for research purposes and the potential healthcare
benefits are manifold, including the treatment of cancers and the
development of the world's first steroid treatment for
Coronavirus sufferers. If access to the dataset was