It took three days, but I finally found a panel at BIO 2018
that addressed the current challenges in privacy and security
regarding health data. This panel, Realizing the Potential of Clinical and Consumer
Genomics, was focused on all the new genetic tests that are
available (with more to come) and all the genetic data those tests
are generating. I was particularly impressed with the approach of
Mindstrong Health to privacy and security,
which includes an advisory compliance panel that includes patients,
bioethicists and legal academics, and promises to publish white
papers on the subject.
But this wasn't the end of the discussion. During this
discussion, another panelist from a direct-to-consumer genetic
testing company said his company had formed a privacy working group
with three other personal genomics companies, and together they are
working to redefine what privacy means in consumer genomics, what
standards should be adhered to by their industry and,
